<%@LANGUAGE="VBSCRIPT" CODEPAGE="1252"%> Kansas Research
 
Self-Determination and Individual and Family Control: Understanding the Impact of Participants and Their Circles of Support
 
 
Judith M.S. Gross, Ann and Rud Turnbull
Department of Special Education, University of Kansas
 
 

This multiple case study of two individuals with developmental disabilities identifies the factors that lead to implementing Individual and Family Control (IFC) of Home and Community Based Services (HCBS) waiver monies and identifies the impact and benefits of this budgeting and service delivery option. This research identifies changes resulting from IFC and any indicators of improved quality of life. The study targets individuals with developmental disabilities and their circles of support that are implementing IFC for needed support services. A focus group, an individual interview, and supporting documentation were the primary sources of data collection. The researcher acted as facilitator of the focus group consisting of two circles of support. An individual interview with the case manager for both men was conducted approximately 1-2 weeks later. Both the focus group and individual interview were recorded and transcribed. Supporting documentation, a third source of data including copies of person-centered plans and individual budgets for both men, was obtained via the case manager and local agency representative upon written permission from the guardian. Findings indicate that the power to individualize supports and services to meet a person’s needs is one of the primary reasons for choosing IFC. Individualization benefits both the target individual and their circle of support by meeting needs more readily and adding to the level of satisfaction and closeness within the circle of support. Ultimately, greater satisfaction and empowerment in various aspects of their lives leads to improved or positive quality of life indicators for the target individuals.